BLOG: 8 tips for living and dying well

Quick tip

In her years working as a palliative care doctor, Elizabeth has learned a lot about dying well, and not so well. Here she shares her tips for increasing your odds of experiencing a more peaceful death.

1. Don’t grow old or get seriously unwell without a plan

Trust me - you don’t want to be an elderly person or critically ill and sent off to hospital without an Advance Care Directive to guide your care. Don’t be that person. Don’t let it happen to your parents. Get your affairs in order and write the plan! Don’t wait for a crisis.

2. Appoint a substitute-decision maker you can trust

Around 50% of people will be unable to make their own end-of-life treatment decisions. If this happens to you, who will speak for you?

Your substitute decision-maker should have the confidence to speak up, stay level-headed in a crisis and be prepared to advocate for what you would want. Make sure it’s someone you trust to make decisions according to your values, not theirs.

"I’m not convinced the ‘battle’ metaphor is helpful... Death is a natural life experience, it’s not something we ‘succumb’ to."
3. Don’t assume your doctor will know the best treatment for you

Doctors are experts in medicine; we’re not mind-readers. We want to do the right thing, but feel bound to save your life if you don’t clearly express your wishes otherwise.

If you don’t communicate what quality of life means to you or what medical outcomes you would find unacceptable, how you would expect an emergency doctor you’ve never met to make the right call for you?

4. Talking about dying is not harder than a prolonged, painful death

Let's not mince words. Our death denying culture is robbing too many people of a comfortable and dignified end. People put off the conversation believing it to be too difficult. But those who do advance care planning report feeling more comfortable and at peace with the knowledge that they have documented their wishes. Having seen the consequences of patients ending their days without a clear plan, my advice is start the conversation sooner, rather than later. 

5. Lose the ‘the battle’ metaphor

I’m not convinced the ‘battle’ metaphor is helpful for someone facing the end of their life. The battle infers it is something that can be one or overcome by the bravest ‘warriors’. Sometimes all that fighting talk gets in the way of honest and realistic conversations about how the patient might want to spend the time they have left.

Regardless of illness or medical prognosis, death is the ultimate fate of us all. Death is a natural life experience, it’s not something we ‘succomb’ to. And it’s not a failure! If metaphors are needed, I would prefer ‘journey’.

6. Advance care planning is not just for old people

We don’t all get to live out our threescore years and ten. Sudden events can happen to anyone. Car accidents, heart attacks, strokes, the list goes on. If you’re unlucky enough to find yourself in this situation, chances are you will be unable to make your own medical treatment decisions. Without a plan making your preferences clear, then you leave it up to others to make life and death decisions for you.

"I’ve seen the most loving of families torn apart because they cannot agree on the best course of action for a family member. Don’t let this happen to your family."
7. Having a loving family does not guarantee a peaceful end

Bad things happen to great families. I’ve seen the most loving of families torn apart because they cannot agree on the best course of action for a family member. Don’t let this happen to your family. Better to have this conversation over a relaxed family dinner, rather than at 3am in the emergency room.

8. Speak up and be clear about what you want

The key to dying well is living well for as long as possible. Be clear about what matters most to you. In your final days is it more important that you remain lucid or pain-free? Would you prefer the quiet company of close family or a larger circle of friends? You might prefer the comfort of your beloved pet.

Remember, the most important part of your advance care plan is you. This is your opportunity be heard.

Find out how you can plan for your future care.

Advance care planning:

  • is essential to person-centred care
  • promotes care that is consistent with a person’s goals, values, beliefs and preferences
  • prepares people and their substitute decision-makers for making healthcare decisions
  • improves outcomes for people, their family and carers, health, aged and community care workers, and the health system
  • is part of routine care, and the person’s healthcare journey
  • is an ongoing process
  • may be initiated or completed by the person themselves or by health, aged and community care workers.

* Names and personal details have been changed for privacy reasons

Advance care planning documents can have different names depending on the state or territory. Find forms for your location >

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