Research

National advance care planning research and collaborations are a key priority for Advance Care Planning Australia. Our research is overseen by a National Advance Care Planning Research Advisory Group. We collaborate with many leading universities and organisations to deliver robust research initiatives and build high-level evidence. We shared our evidence and findings via academic and grey literature publications.


ACPA Research

Prevalence of advance care planning documentation and self-reported uptake in older Australians with a cancer diagnosis.

Detering K, Sellars M, Kelly H, et al. Journal of Geriatric Oncololgy (provisionally accepted 17 May 2020, forthcoming)

Challenges in obtaining research ethics and governance approvals for an Australian national inter-sector multi-site audit study.

Buck K, Nolte L, Kelly H, et al. Australian Health Review (accepted 20 March 2020, forthcoming)

Making decisions about long-term institutional care placement among people with dementia and their caregivers: systematic review of qualitative studies

Teng C, Loy C, Sellars M, et al. Gerontologist. 2020;60(4):e329–e346. 

Personal and interpersonal factors and their associations with advance care planning documentation: A cross-sectional survey of older adults in Australia

Sellars M, Detering KM, Sinclair C, et al. Journal of Pain and Symptom Management. 2020;59(6):1212-1222.e3

"This is unchartered water for all of us": Challenges anticipated by hospital clinicians when voluntary assisted dying becomes legal in Victoria

McDougall R, Hayes B, Sellars M, et al. Australian Health Review

Prospective multicentre cross-sectional audit among older Australians accessing health and residential aged care services: protocol for a national advance care directive prevalence study

Detering KM, Buck K, Sellars M, et al, Open 2019;9:e031691.
 

Doctors’ perspectives on adhering to advance care directives when making medical decisions for patients: an Australian interview study

Moore N, Detering KM, Low T, et al, BMJ Open 2019;9:e032638.

 

Costs and outcomes of advance care planning and end-of-life care for older adults with end-stage kidney disease: A person-centred decision analysis

Sellars M, Clayton JM, Detering KM, Tong A, Power D, et al. PLOS ONE. 2019:14(5): e0217787.

Concordance between self-reported completion of advance care planning documentation and availability of documentation in Australian health and residential aged care services

Buck K, Detering KM, Pollard A, et al.  Journal of pain and symptom management. 2019: 58(2):264-274.

Facilitators and barriers to advance care planning implementation in Australian aged care settings: A systematic review and thematic analysis

Batchelor F, Hwang K, Haralambous B, et al. Australasian journal on ageing. 2019;38(3):173-181.

Volunteer involvement in advance care planning: a scoping review

Sellars M, Simpson J, Kelly H, et al. . Journal of pain and symptom management. 2019;57(6):1166-1175.e1.

From Patient-Centered to Person-Centered Care for Kidney Diseases

Morton RL, Sellars M. . Clinical Journal of the American Society of Nephrology. 2019;14:623-5.

Prevalence and correlates of advance care directives among older Australians accessing health and residential aged care services: multicentre audit study

Detering KM, Buck K, Ruseckaite R, et al. BMJ open. 2019;9:e025255.

Case‐control study of end‐of‐life treatment preferences and costs following advance care planning for adults with end‐stage kidney disease.

Sellars M, Morton RL, Clayton JM, Tong A, Mawren D, Silvester W, Power D, Ma R, Detering KM. Nephrology. 2019 Feb;24(2):148-54.

Perspectives of people with dementia and carers on advance care planning and end-of-life care: A systematic review and thematic synthesis of qualitative studies.

Sellars M, Chung O, Nolte L, et al.  Palliative medicine. 2019;33:274-90.

Exploring the knowledge, attitudes and needs of advance care planning in older Chinese Australians

Yap SS, Chen K, Detering KM, Fraser SA. Journal of clinical nursing. 2018;27:3298-306.

An interview study of patient and caregiver perspectives on advance care planning in ESRD

Sellars M, Clayton JM, Morton RL, et al. American Journal of Kidney Diseases. 2018;71:216-24.

A randomised controlled trial of an advance care planning intervention for patients with incurable cancer

Johnson SB, Butow PN, Bell ML, et al. British journal of cancer. 2018;119:1182.

A case‐control study of end‐of‐life treatment preferences and costs following advance care planning for adults with end stage kidney disease

Sellars M, Morton RL, Clayton JM, Tong A, Mawren D, Silvester W, Power D, Ma R, Detering KM. Nephrology. 2018 Feb 1.


An economic model of advance care planning in Australia: a cost-effective way to respect patient choice

Nguyen K-H, Sellars M, Agar M, et al. BMC health services research. 2017;17:797.

Prospective comparative effectiveness cohort study comparing two models of advance care planning provision for Australian community aged care clients

Detering KM, Carter RZ, Sellars MW, Lewis V, Sutton EA. . BMJ Supportive & Palliative Care. 2017;7:486-94.

Advance care planning in chronic kidney disease: a survey of current practice in Australia

Luckett T, Spencer L, Morton RL, Pollock CA, Lam L, Silvester W, Sellars M, Detering KM, Butow PN, Tong A, Clayton JM. Nephrology. 2017 Feb 1;22(2):139-49.

Australian psychiatrists' support for psychiatric advance directives: responses to a hypothetical vignette

Sellars M, Fullam R, O'Leary C, Mountjoy R, Mawren D, Weller P, Newton R, Brophy L, McEwan T, Silvester W. Psychiatry, Psychology and Law. 2017 Jan 2;24(1):61-73.

Protocol for a national prevalence study of advance care planning documentation and self-reported uptake in Australia

Ruseckaite R, Detering KM, Evans SM, et al. BMJ Open. 2017;7:e018024.

Exploring the knowledge, attitudes and needs of advance care planning in older Chinese-Australian

Yap SS, Chen K, Detering KM, Fraser SA.Journal of clinical nursing. 2017 May 23.


2016

Advance care planning in Australia: what does the law say?

Carter RZ, Detering KM, Silvester W, Sutton E. Australian Health Review. 2016 Aug 26;40(4):405-14.

2016

Advance care planning in patients with incurable cancer: study protocol for a randomised controlled trial

Johnson S, Clayton J, Butow PN, Silvester W, Detering K, Hall J, Kiely BE, Cebon J, Clarke S, Bell ML, Stockler M. BMJ open. 2016 Dec 1;6(12):e012387.

2015

Current advance care planning practice in the Australian community: an online survey of home care package case managers and service managers

Sellars M, Detering KM, Silvester W. BMC palliative care. 2015 Dec;14(1):15.

2015

Palliative care health professionals’ experiences of caring for patients with advance care directives

Johnson CE, Singer R, Masso M, Sellars M, Silvester W.  Australian Health Review. 2015 Apr 23;39(2):154-9.

2015

Advance care planning in palliative care: a national survey of health professionals and service managers

Sellars M, Silvester W, Masso M, Johnson CE. Australian Health Review. 2015 Apr 23;39(2):146-53.

2015

Feasibility and acceptability of advance care planning in elderly Italian and Greek speaking patients as compared to English-speaking patients: an Australian cross-sectional study

Detering K, Sutton E, Fraser S, Wallis K, Silvester W, Mawren D, Whiteside K.  BMJ open. 2015 Aug 1;5(8):e008800.

2014

Advance care planning for adults with CKD: a systematic integrative review. American Journal of Kidney Diseases

Luckett T, Sellars M, Tieman J, Pollock CA, Silvester W, Butow PN, Detering KM, Brennan F, Clayton JM.  2014 May 1;63(5):761-70.

2014

Teaching general practitioners and doctors-in-training to discuss advance care planning: evaluation of a brief multimodality education programme. BMJ supportive & palliative care

Detering K, Silvester W, Corke C, Milnes S, Fullam R, Lewis V, Renton J. 2014 May 20:bmjspcare-2013.

2011

Advance directives, perioperative care and end-of-life planning. Best Practice & Research Clinical Anaesthesiology

Silvester W, Detering K. 2011 Sep 1;25(3):451-60.

2011

Advance care planning and end-of-life care

Silvester W, Detering K.The Medical journal of Australia. 2011 Oct 17;195(8):435-6.

2010

The impact of advance care planning on end of life care in elderly patients: randomised controlled trial

Detering KM, Hancock AD, Reade MC, Silvester W. Bmj. 2010 Mar

 

Lady smiling with a board full of post it notes

Future research

Research collaboration

We invite opportunities to partner with individuals and organisations pursuing research in similar areas of interests.

Contact us

Current research projects

Advance care planning in cancer care

Advance Care Planning Australia, supported by funding by Cancer Australia, is leading research to help more Australians affected by cancer access the benefits of advance care planning.

Our research objective is to better understand the barriers and enablers of advance care planning for people with cancer. We will contribute to building evidenced-based information and explore consumer and professional preferences for content, timing and delivery.

Advance care directive prevalence study project

During 2018-20, ACPA has been funded by the Australian Government to deliver the Prevalence of Advance Care Planning Documentation in Australian Health and Residential Aged Care Services study. This study will collect a national dataset on the uptake of ACDs across jurisdictions, sectors, medical conditions and services.

The findings of this study have implications for policy makers, stakeholder organisations, service providers and the community, within Australia and internationally.

Substitute decision-maker project

Substitute decision makers make health and personal care decisions on someone’s behalf if the person can no longer decide themselves. However, some substitute-decision makers experience stress, guilt and doubt when making medical decisions because of uncertainty regarding the clinical outcomes of their decision to accept or decline life-prolonging treatment.

This substitute-decision maker project aims to review existing available resources for substitute-decision makers nationally and survey the Australian general public to better understand their knowledge, attitudes and concerns regarding substitute-decision making. The findings will help inform future strategies and resources that will optimise decision-making confidence and coping pathways for people who need to make difficult end-of-life decisions on someone’s behalf.


Student projects

Clinicians’ perspectives on adhering to Advance Care Directives for patients with chronic disease 

The aim of this study is to describe the perspectives of doctors involved in the care of patients with chronic disease. It involves qualitative interviews to explore doctors’ experiences and attitudes regarding ACDs, to gain a deeper understanding about ACD adherence and implementation in clinical practice.


Grey literature and Commonwealth reports

  • Research & Publications

    Advance care planning in residential aged care: A rapid review of literature

    Advance Care Planning Australia

    This report examines literature relating to advance care planning implementation and uptake within a residential aged care setting.
  • Research & Publications

    Advance care planning laws: can we improve consistency?

    Advance Care Planning Australia

    This report summarises Australian ACP laws, exploring consistency and variation in terminology, scope, formalities, obligations and recognition.
  • Research & Publications

    Obligations of Australian health practitioners in relation to advance care planning

    Advance Care Planning Australia

    This report describes the review of health practitioner obligations, protections and exceptions in relation to ACP in Australia.
  • Research & Publications

    Accessibility of advance care plans in Victoria

    Advance Care Planning Australia

    This report examines the accessibility of advance care planning documentation in Victoria, Australia and internationally. The report identifies barriers and enabler and recommends safe and reliable methods of storing, accessing and transferring advance care planning documentation across health and aged care services.
  • Research & Publications

    Prevalence of advance care planning documentation in Australian health and residential aged care services - Short report 2017

    Advance Care Planning Australia

    This report is a short summary of the final report and outlines the key findings of the Prevalence of Advance Care Planning Documentation in Australian Health and Residential Aged Care Services project.
  • Research & Publications

    Prevalence of advance care planning documentation in Australian health and residential aged care services report 2019

    Advance Care Planning Australia

    The Prevalence of Advance Care Planning Documentation in Australian Health and Residential Aged Care Services project was launched in 2017. This is the final report for the project.
  • Research & Publications

    Advance care planning in aged care: A guide to support implementation in community and residential settings

    Advance Care Planning Australia

    This guide provides information to assist aged care providers, particularly managers and senior staff, in implementing advance care planning.
  • Research & Publications

    Review of Advance Care Planning Laws Across Australia

    Advance Care Planning Australia

    This report is a summary of a comprehensive report prepared by Advance Care Planning Australia and DLA Piper with the purpose of reviewing advance care planning laws across Australia. The review identifies relevant legislation, explores consistencies and variation in terminology, scope and obligations.
  • Research & Publications

    Review of advance care planning for people with cancer

    Advance Care Planning Australia

    This rapid literature review identifies and describes Australian academic literature relating to advance care planning for people with cancer. The report focuses on key themes from the literature, including evidence of barriers and facilitators to advance care planning for people with cancer.
  • ACP Education capability framework: summary of research and evaluation

    ACPA

    This report summarises the research and evaluation which informed the development of the Advance Care Planning Education Capability Framework.
  • The Australian public’s knowledge, attitudes and experiences regarding substitute decision-making for medical decisions

    ACPA

    This report provides data and information relating to a 2018 Australian public survey regarding substitute decision-making for medical decisions.