New research reveals most Australians unprepared for future health care decisions

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An older woman is sitting in a hospital bed wearing a hospital gown and looking out the window.
New research reveals most Australians unprepared for future health care decisions

A landmark national study commissioned by Advance Care Planning Australia reveals that only one in three Australians (33%) have taken steps to plan for their future health care, highlighting a widespread lack of preparation for critical medical decisions.

Dr Catherine Joyce, National Manager for Advance Care Planning Australia says the findings show a major gap in routine health care

“This study shows that advance care planning is not a standard part of basic health care in Australia with many Australians missing the opportunity to plan ahead and ensure their health care preferences are known and respected,” Dr Joyce said.

This is the first national prevalence study to take a modern approach to advance care planning. Rather than focusing solely on document completion, the research considers other key elements such as talking with loved ones, choosing substitute decision-makers, and overall motivators and attitudes that drive uptake.

“We often think of advance care planning as just filling out a form, but it's much more than that. It's about open communication, understanding your options, and making sure your choices guide your care – especially during life’s most difficult moments,” Dr Joyce said.

“While it might feel uncomfortable to think about, planning ahead can be one of the most empowering and compassionate choices you make. It brings peace of mind to individuals. It also reduces the burden on family, friends, and loved ones who are put in the difficult position of having to make decisions for others during times of crisis.”

The national study surveyed 3,390 Australian adults in February-March 2025 through a quantitative online survey with participants voicing the importance of advance care planning. The results were weighted to represent the broader population by age, gender, and state or territory.

This research sets a vital national benchmark for understanding the uptake of advance care planning across Australia. It also lays the groundwork for tracking future changes in awareness, attitudes, and participation over time

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